Oh Charles, this is a group I hope my friends never join...but...you have. I am in remission for 5 years now from Non Hodgkins Lymphoma...along with my brain tumor and 1 less kidney,this is my unholy triad. A year ago January, my son, who inherited my genetic disease, was rushed to hospital for an emergency operation to remove his brain tumor. He would never get tested for Von Hippel Lindau (rare genetic disease that causes tumors that can turn to Cancer) but finally, he had no choice. I can share a few thoughts I hope will help. First off, I (and my son ) are still here...which proves it CAN be beaten! I have learned to stress as little as possible...with my relationships, my job and ...well, everything! A positive attitude is non negotiable. When you feel you just can't...rely and lean on your friends and those who love you; remember you would do the same for them in a heartbeat. Finally, a reminder that you should do all the shit you were planning for a distant future. I did my marathon in 2019 that I was going to wait to do until I turned 60...I am slowly writing my book...and other smaller stuff. I too have questioned why...especially after being cancer free for 12 years...and have come to the conclusion , (with the help of fundraising with Team in Training) , that I am still here to give people hope and to help my son in this journey called life. if you ever want to contact me, feel free. chocoholic_123@hotmail.com. Who would have thought all those years ago... remember Nicks birthday celebration? I was so full of life, excited to run with the big kids... oh, that was my last piece of advice. Remember the things that make/made you happy...contact old friends, take out pictures to look at, even medals... some days they might make you sad because you are no longer that person...BUT other days, they WILL make you smile. You never know until you try. Hugs...and I mean it...reach out if you want an ear. Ellie
Charles, this news just hit me very hard. My heart is heavy. I don't have any words to say that will make you feel better but know that I will be thinking of you both. Thank you for being brave enough to share this with us and reminding us all how precious life is.
I've been thinking about you since you told us the news last summer. I'm so sad that the cancer has spread...nobody deserves that. I'm proud of you for taking the leap to tell the world about your health. We'll all benefit by it. Sending you much love.
Damn, Charles, I'm so sorry that you're sick. I'm glad that you're writing it out. I'm glad that you're living among hawks, skies, dogs, trees, and bonfires. Thank you for sharing.
Charles I’m so sorry to learn about your cancer. Please keep writing! Your story moved me and shared reminders I needed to hear. I really feel for you. Thank you.
Charles you have to apply the determination you and I did when we made that impossible mountain bike climb from the stream up to the road!!! I have not communicated much with you over the years since you left our realm but often thought of you fondly and still consider you a super friend. Plus followed your fascinating blog! Are you looking at alternatives like hemp extracts in addition to mainstream medicine? This may be cold consolation but I had a NDE decades ago and went through a brilliantly white tunnel-like passageway and it was the most blissful experience ever imaginable by me. I realized there is nothing to fear and in fact I was mad at the nurses who revived me and stopped my journey.
Still I'm praying for your recovery and a continued long trail in this world. Love you brother.
Oh Charles, this is a group I hope my friends never join...but...you have. I am in remission for 5 years now from Non Hodgkins Lymphoma...along with my brain tumor and 1 less kidney,this is my unholy triad. A year ago January, my son, who inherited my genetic disease, was rushed to hospital for an emergency operation to remove his brain tumor. He would never get tested for Von Hippel Lindau (rare genetic disease that causes tumors that can turn to Cancer) but finally, he had no choice. I can share a few thoughts I hope will help. First off, I (and my son ) are still here...which proves it CAN be beaten! I have learned to stress as little as possible...with my relationships, my job and ...well, everything! A positive attitude is non negotiable. When you feel you just can't...rely and lean on your friends and those who love you; remember you would do the same for them in a heartbeat. Finally, a reminder that you should do all the shit you were planning for a distant future. I did my marathon in 2019 that I was going to wait to do until I turned 60...I am slowly writing my book...and other smaller stuff. I too have questioned why...especially after being cancer free for 12 years...and have come to the conclusion , (with the help of fundraising with Team in Training) , that I am still here to give people hope and to help my son in this journey called life. if you ever want to contact me, feel free. chocoholic_123@hotmail.com. Who would have thought all those years ago... remember Nicks birthday celebration? I was so full of life, excited to run with the big kids... oh, that was my last piece of advice. Remember the things that make/made you happy...contact old friends, take out pictures to look at, even medals... some days they might make you sad because you are no longer that person...BUT other days, they WILL make you smile. You never know until you try. Hugs...and I mean it...reach out if you want an ear. Ellie
Charles, this news just hit me very hard. My heart is heavy. I don't have any words to say that will make you feel better but know that I will be thinking of you both. Thank you for being brave enough to share this with us and reminding us all how precious life is.
I've been thinking about you since you told us the news last summer. I'm so sad that the cancer has spread...nobody deserves that. I'm proud of you for taking the leap to tell the world about your health. We'll all benefit by it. Sending you much love.
Damn, Charles, I'm so sorry that you're sick. I'm glad that you're writing it out. I'm glad that you're living among hawks, skies, dogs, trees, and bonfires. Thank you for sharing.
Charles I’m so sorry to learn about your cancer. Please keep writing! Your story moved me and shared reminders I needed to hear. I really feel for you. Thank you.
Love you Charles.
Yes the topical should be OK but best to check first. I can send you a jar no problem if you are cleared to try it.
You do make the world a better place.
I would love to see you guys. I miss spending time with you both.
Charles you have to apply the determination you and I did when we made that impossible mountain bike climb from the stream up to the road!!! I have not communicated much with you over the years since you left our realm but often thought of you fondly and still consider you a super friend. Plus followed your fascinating blog! Are you looking at alternatives like hemp extracts in addition to mainstream medicine? This may be cold consolation but I had a NDE decades ago and went through a brilliantly white tunnel-like passageway and it was the most blissful experience ever imaginable by me. I realized there is nothing to fear and in fact I was mad at the nurses who revived me and stopped my journey.
Still I'm praying for your recovery and a continued long trail in this world. Love you brother.