Discussion about this post

User's avatar
Ellie Wallace's avatar

Oh Charles, this is a group I hope my friends never join...but...you have. I am in remission for 5 years now from Non Hodgkins Lymphoma...along with my brain tumor and 1 less kidney,this is my unholy triad. A year ago January, my son, who inherited my genetic disease, was rushed to hospital for an emergency operation to remove his brain tumor. He would never get tested for Von Hippel Lindau (rare genetic disease that causes tumors that can turn to Cancer) but finally, he had no choice. I can share a few thoughts I hope will help. First off, I (and my son ) are still here...which proves it CAN be beaten! I have learned to stress as little as possible...with my relationships, my job and ...well, everything! A positive attitude is non negotiable. When you feel you just can't...rely and lean on your friends and those who love you; remember you would do the same for them in a heartbeat. Finally, a reminder that you should do all the shit you were planning for a distant future. I did my marathon in 2019 that I was going to wait to do until I turned 60...I am slowly writing my book...and other smaller stuff. I too have questioned why...especially after being cancer free for 12 years...and have come to the conclusion , (with the help of fundraising with Team in Training) , that I am still here to give people hope and to help my son in this journey called life. if you ever want to contact me, feel free. chocoholic_123@hotmail.com. Who would have thought all those years ago... remember Nicks birthday celebration? I was so full of life, excited to run with the big kids... oh, that was my last piece of advice. Remember the things that make/made you happy...contact old friends, take out pictures to look at, even medals... some days they might make you sad because you are no longer that person...BUT other days, they WILL make you smile. You never know until you try. Hugs...and I mean it...reach out if you want an ear. Ellie

Expand full comment
Lesa Benson's avatar

Charles, this news just hit me very hard. My heart is heavy. I don't have any words to say that will make you feel better but know that I will be thinking of you both. Thank you for being brave enough to share this with us and reminding us all how precious life is.

Expand full comment
22 more comments...

No posts